V*****G
发帖数: 337 | 1 Can someone please help on Bourneville-Pringle disease?
Which hospitals / doctors handle this disease well in US? Thanks!
Any info will be appreciated. |
A*******s
发帖数: 9638 | 2 Bourneville-Pringle disease is also called Tuberous sclerosis.
TS is an genetic autosomal dominant disease.
This is a very complex disease.
http://www.medlink.com/medlinkcontent.asp |
V*****G
发帖数: 337 | 3 Thanks A++, is there effective treatment for this disease?
Friend is seeking medical treatment in us?
【在 A*******s 的大作中提到】
: Bourneville-Pringle disease is also called Tuberous sclerosis.
: TS is an genetic autosomal dominant disease.
: This is a very complex disease.
: http://www.medlink.com/medlinkcontent.asp
|
A*******s
发帖数: 9638 | 4 Not to my knowledge.
【在 V*****G 的大作中提到】
: Thanks A++, is there effective treatment for this disease?
: Friend is seeking medical treatment in us?
|
V*****G
发帖数: 337 | 5 Thanks, they heard there is a medication that can alleviate the skin lesions
, is that true? 3x.
【在 A*******s 的大作中提到】
: Not to my knowledge.
|
A*******s
发帖数: 9638 | 6 Not sure about skin lesions treatment.
But Sirolimus is the drug showing some promise for renal and brain lesions.
http://clinicaltrials.gov/ct2/show/NCT00490789
No expertise for these meds since it is not in my field.
lesions
【在 V*****G 的大作中提到】
: Thanks, they heard there is a medication that can alleviate the skin lesions
: , is that true? 3x.
|
V*****G
发帖数: 337 | 7 Thanks for your consistent help!
【在 A*******s 的大作中提到】
: Not sure about skin lesions treatment.
: But Sirolimus is the drug showing some promise for renal and brain lesions.
: http://clinicaltrials.gov/ct2/show/NCT00490789
: No expertise for these meds since it is not in my field.
:
: lesions
|
V*****G
发帖数: 337 | 8 Can someone please help on Bourneville-Pringle disease?
Which hospitals / doctors handle this disease well in US? Thanks!
Any info will be appreciated. |
A*******s
发帖数: 9638 | 9 Bourneville-Pringle disease is also called Tuberous sclerosis.
TS is an genetic autosomal dominant disease.
This is a very complex disease.
http://www.medlink.com/medlinkcontent.asp |
V*****G
发帖数: 337 | 10 Thanks A++, is there effective treatment for this disease?
Friend is seeking medical treatment in us?
【在 A*******s 的大作中提到】
: Bourneville-Pringle disease is also called Tuberous sclerosis.
: TS is an genetic autosomal dominant disease.
: This is a very complex disease.
: http://www.medlink.com/medlinkcontent.asp
|
|
|
A*******s
发帖数: 9638 | 11 Not to my knowledge.
【在 V*****G 的大作中提到】
: Thanks A++, is there effective treatment for this disease?
: Friend is seeking medical treatment in us?
|
V*****G
发帖数: 337 | 12 Thanks, they heard there is a medication that can alleviate the skin lesions
, is that true? 3x.
【在 A*******s 的大作中提到】
: Not to my knowledge.
|
A*******s
发帖数: 9638 | 13 Not sure about skin lesions treatment.
But Sirolimus is the drug showing some promise for renal and brain lesions.
http://clinicaltrials.gov/ct2/show/NCT00490789
No expertise for these meds since it is not in my field.
lesions
【在 V*****G 的大作中提到】
: Thanks, they heard there is a medication that can alleviate the skin lesions
: , is that true? 3x.
|
V*****G
发帖数: 337 | 14 Thanks for your consistent help!
【在 A*******s 的大作中提到】
: Not sure about skin lesions treatment.
: But Sirolimus is the drug showing some promise for renal and brain lesions.
: http://clinicaltrials.gov/ct2/show/NCT00490789
: No expertise for these meds since it is not in my field.
:
: lesions
|
D**i
发帖数: 325 | 15 óD2?
【在 V*****G 的大作中提到】
: Can someone please help on Bourneville-Pringle disease?
: Which hospitals / doctors handle this disease well in US? Thanks!
: Any info will be appreciated.
|
