u*****e 发帖数: 606 | 1 现有疗法,五年存活52%, 三年存活64%。如果有需要和可能,应尽快和你女儿的医生
联系,咨询
clinical trials.
http://www.cancer.gov/search/ResultsClinicalTrials.aspx?
protocolsearchid=8454976&vers=2
Current Clinical Trials
Check for U.S. clinical trials from NCI's list of cancer clinical trials
that are now accepting patients with recurrent Wilms tumor and other
childhood kidney tumors. The list of clinical trials can be further
narrowed by location, drug, intervention, and other criteria.
General information about clinical trials is also available from the NCI
Web site. | u*****e 发帖数: 606 | 2 你女儿和我的女儿同名,看到这个消息很心痛。尽最大努力,不要放弃希望!!
【在 u*****e 的大作中提到】 : 现有疗法,五年存活52%, 三年存活64%。如果有需要和可能,应尽快和你女儿的医生 : 联系,咨询 : clinical trials. : http://www.cancer.gov/search/ResultsClinicalTrials.aspx? : protocolsearchid=8454976&vers=2 : Current Clinical Trials : Check for U.S. clinical trials from NCI's list of cancer clinical trials : that are now accepting patients with recurrent Wilms tumor and other : childhood kidney tumors. The list of clinical trials can be further : narrowed by location, drug, intervention, and other criteria.
| u*****e 发帖数: 606 | 3 这个病因是 Chr22q11.2 和 Chr11p15.5,可能是遗传或者是新发突变(de novo)。
chr22q11这个区域非常复杂和重要,很多tumor和mental deseases的遗传病因都
在这个位置。
请你们夫妇还有其他孩子都立刻去做一下genome consulting,
一个是确定病因,更重要的是确保其他孩子的健康。
【在 u*****e 的大作中提到】 : 你女儿和我的女儿同名,看到这个消息很心痛。尽最大努力,不要放弃希望!!
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