b*****e
发帖数: 861 | 1 在美国，重症肌无力 myasthenia gravis 可有比较好的治疗方法？
亲戚的一个小孩，现在已经上高中了，很聪明的一个孩子，患重症肌无力 myasthenia
gravis多年，目前行动全靠他妈妈背。想打听下，在美国，重症肌无力 myasthenia
gravis 可有比较好的治疗方法？万分感谢。 | f******I
发帖数: 769 | 2
myasthenia
consider thymectomy if this has not been done,
anticholinesterase drugs such as neostigamine or pyridostigomine is only
symptomatic relief and if you overdose them the symptoms would get worse,
plus those drugs wouldn't affect the couse of the disease,
if he already had his thymus gland removed then maybe steroid and IVIG and
plasmapheresis,
the new drug would be cellcept, not sure how effective that would be though,
【在 b*****e 的大作中提到】
: 在美国，重症肌无力 myasthenia gravis 可有比较好的治疗方法？
: 亲戚的一个小孩，现在已经上高中了，很聪明的一个孩子，患重症肌无力 myasthenia
: gravis多年，目前行动全靠他妈妈背。想打听下，在美国，重症肌无力 myasthenia
: gravis 可有比较好的治疗方法？万分感谢。
| b*****e
发帖数: 861 | 3 衷心感谢fatmanII的专业解答。
不知道这些治疗方案的疗效如何？亲戚非常想把孩子的病治好，如果到美国治病，全自
费，花费是多少？
though,
【在 f******I 的大作中提到】
:
: myasthenia
: consider thymectomy if this has not been done,
: anticholinesterase drugs such as neostigamine or pyridostigomine is only
: symptomatic relief and if you overdose them the symptoms would get worse,
: plus those drugs wouldn't affect the couse of the disease,
: if he already had his thymus gland removed then maybe steroid and IVIG and
: plasmapheresis,
: the new drug would be cellcept, not sure how effective that would be though,
| f******I
发帖数: 769 | 4
don't know, but i don't think it'd be cheap,
【在 b*****e 的大作中提到】
: 衷心感谢fatmanII的专业解答。
: 不知道这些治疗方案的疗效如何？亲戚非常想把孩子的病治好，如果到美国治病，全自
: 费，花费是多少？
:
: though,
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