s*********6
发帖数: 44 | 1 我国内的朋友发来的邮件，本人医学知识有限，特求助请版上高人, 谢了先。
"我三岁的儿子患恶性脑肿瘤－促纤维增生型髓母细胞瘤，现在做完切除手术了。手术
很成功。在国内继续治疗需要做放化疗，这对他伤害很大，而且效果不一定好。我想请
大家帮忙查查美国现在首否有更好的治疗方式？哪家医院比较权威？" | l*h
发帖数: 4124 | 2 very little information but there are some indication for prognosis:
1. desmoplastic medulloblastoma tends to have better prognosis than other
types.
2. young (can be as young as 3 - 4 yo) patients tend to have good
therapeutic response to chemotherapy. in this age group, chemo after total
resection produces a high percentage of cure (> 5 yrs disease-free survival)
. chemo regimens typically include a -platin or topoisomerase inhibitor and
other drugs.
3. radiation therapy in ≤3 yo is up to debate because it has a high chance
of negative effects on development in this young group. radiation for
medulloblastoma is for the whole neuraxis.
【在 s*********6 的大作中提到】
: 我国内的朋友发来的邮件，本人医学知识有限，特求助请版上高人, 谢了先。
: "我三岁的儿子患恶性脑肿瘤－促纤维增生型髓母细胞瘤，现在做完切除手术了。手术
: 很成功。在国内继续治疗需要做放化疗，这对他伤害很大，而且效果不一定好。我想请
: 大家帮忙查查美国现在首否有更好的治疗方式？哪家医院比较权威？"
| s*********6
发帖数: 44 | 3 Thanks a lot. I'll translate & forward this to my friend.
survival)
and
chance
【在 l*h 的大作中提到】
: very little information but there are some indication for prognosis:
: 1. desmoplastic medulloblastoma tends to have better prognosis than other
: types.
: 2. young (can be as young as 3 - 4 yo) patients tend to have good
: therapeutic response to chemotherapy. in this age group, chemo after total
: resection produces a high percentage of cure (> 5 yrs disease-free survival)
: . chemo regimens typically include a -platin or topoisomerase inhibitor and
: other drugs.
: 3. radiation therapy in ≤3 yo is up to debate because it has a high chance
: of negative effects on development in this young group. radiation for
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