z****i 发帖数: 2 | 1 Dear friends,
An 1 year old kid in China got a rare disease TH-1, which is causing liver
failure and liver cancer. Without proper medicine, he will have to die soon!
The medicine that can save his life is Orfadin (nitisinone) -- a very new
medicine not available in China, while available here since early this year.
It seems that there is no way to get uncommon medicine without prescriptions
in this country. While the kid can not come here to see a doctor, a doctor
wouldn't like to prescribe th |
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