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全部话题 - 话题: dysplasia
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m***h
发帖数: 23691
1
Until very recently, cats were not thought to be affected by hip dysplasia.
Well known in many dog breeds as an inherited disorder, cats were felt to be
free of the condition. New information and research has shown that this
disease does indeed exist in the cat and is likely an inherited disorder. No
single gene is thought to be responsible for hip dysplasia in either the
dog or the cat, but rather a complex interplay of several genetic factors is
involved. We do know that if a cat or dog is fou... 阅读全帖
h***e
发帖数: 866
2
【 以下文字转载自 NextGeneration 讨论区 】
发信人: hlife (天使宝宝), 信区: NextGeneration
标 题: 请有Hip Dysplasia (DDH) 经验的爸妈看过来
发信站: BBS 未名空间站 (Thu Jun 16 16:49:01 2011, 美东)
一个月大的宝宝确诊为moderate Hip Dysplasia (DDH),上了Harness,医生给她穿
Harness的时候她不哭不闹,回家吃了奶就睡了3个小时,但是醒来过后就开始
screaming,就像哪里把她伤着了一样,(宝宝以前一直很天使,哭都很少,从未
screaming),晚上睡了一个多小时就开始一直吵,即便抱着她也是短则几分钟,长则十
几二十分钟就要screaming一次。同时食量大增,差不多增加了50%,上午抱着她好好睡
了一个多小时,然后又是时不时screaming,什么都哄不住。下午给医生打了电话,让
先把harness取下4个小时,明天让harness厂家的人看看是不是需要adjustment(这个
医生只每周来我们城市一天)。我们给她把harness取下后立... 阅读全帖
l*******g
发帖数: 118
3
家里的第二只猫进家里才1个多月,还没买保险现在4个月大,从Humane Society领回来
的。
刚领回来的时候就觉得后腿好像不太正常,和家里以后的猫猫走路姿势都不一样,去做
Vet check 的时候还特意问了医生,医生给看了下说没事,我们就没太在意
结果昨天晚上发现他左后腿一瘸一瘸的,现在基本上用3个腿走路,奇怪的是他仍然和
以前一样的跑啊跳啊,好像完全没有意识到自己是用3个腿跑跳的,没意识到自己腿不
方便,也不叫疼,不闹,看他那个样子我的心都碎了!我家的大宝有点啥不舒服就叫得
不行不行的,我们就马上知道要带她看医生了。这个老二还真是一点不心疼自己啊!我
们都心疼死了。
我上网查了一下Hip Dysplasia, 感觉上症状好像的, 而且看了一个视频,里面狗狗得
了HIP, 和我家二宝走路姿势很像
我想马上带他去看医生,可是问题是我们还没有给他买保险呢,我和老公又都是学生,
不知道手术费要多少钱!现在买保险的话,比如买PETPLAN, 要14天后才能看病,我要
是等到14天以后带他去看是不是太晚了啊?
现在都不知道该怎么办才好,听说Hip Dysplasia是天生的,初期感觉不到... 阅读全帖
g*****j
发帖数: 1211
4
I am not an orthopedic doctor. But I found the guideline for DDH treatment.
DDH treatment is age dependent. It seems that in US, more aggressive
treatment will be used if patient is more than 6 mo old and has definitive
diagnosis of DDH. But I cannot evaluate how bad is this patient's DDH.
Read the full guideline if you are interested:
INTRODUCTION — Developmental dysplasia of the hip (DDH) describes a
spectrum of conditions related to the development of the hip in infants and
young childr
b********o
发帖数: 772
5
☆─────────────────────────────────────☆
zucchini (浪迹天涯) 于 (Mon Oct 12 17:37:12 2009, 美东) 提到:
因为是第一个孩子,女孩,还是breech,我家娃没有逃过Hip dysplasia,现在正在用
brace校正,娃带的时候大哭,看到娃的样子,觉得好可怜啊,我在医院都哭死了
有没有谁的孩子有这个问题,后来痊愈的啊?
☆─────────────────────────────────────☆
cheer (糊里糊涂) 于 (Mon Oct 12 18:05:22 2009, 美东) 提到:
好像breech的宝宝都有这种可能,我家女儿因为是frank breech,ob告诉我们说有20%
的可能是因为髋关节错位使不上劲,翻不下去,所以一直头向上。我们前天去做的B超
,结果要等15号儿医告诉我们。同着急担心中。
☆─────────────────────────────────────☆
zucchini (浪迹天涯) 于 (Mon Oct 12 18:08:59 2009
h***e
发帖数: 866
6
来自主题: NextGeneration版 - 请有Hip Dysplasia (DDH) 经验的爸妈看过来
一个月大的宝宝确诊为moderate Hip Dysplasia (DDH),上了Harness,医生给她穿
Harness的时候她不哭不闹,回家吃了奶就睡了3个小时,但是醒来过后就开始
screaming,就像哪里把她伤着了一样,(宝宝以前一直很天使,哭都很少,从未
screaming),晚上睡了一个多小时就开始一直吵,即便抱着她也是短则几分钟,长则十
几二十分钟就要screaming一次。同时食量大增,差不多增加了50%,上午抱着她好好睡
了一个多小时,然后又是时不时screaming,什么都哄不住。下午给医生打了电话,让
先把harness取下4个小时,明天让harness厂家的人看看是不是需要adjustment(这个
医生只每周来我们城市一天)。我们给她把harness取下后立马就不哭闹了,虽然还是
不睡,但是自己能在crib里玩。取harness的时候,我确实有看到可能chest的strap有
点紧,昨天医生给穿的时候确实可以放进去好几个指头,但是今天取的时候,宝宝
screaming会用力挣扎,这样胸口上就显得紧。
想跟有经验的爸妈请教宝宝的反应是否正常,问题可能出在哪里... 阅读全帖
S******1
发帖数: 820
7
来自主题: pets版 - OFA Hip Dysplasia ranking
真的呢..Bulldog就是因为breeder人为想创造一种狗的形象 才让狗狗那么可怜 除了
hip dysplasia, 心脏,皮肤各种问题都是很多犬种里最不好的...而且寿命也很短
l*****o
发帖数: 26631
8
Long-Term Health Risks and Benefits Associated with Spay / Neuter in Dogs
Laura J. Sanborn, M.S.
May 14, 2007
Precis
At some point, most of us with an interest in dogs will have to consider
whether or not to spay / neuter our pet. Tradition holds that the benefits
of doing so at an early age outweigh the risks. Often, tradition holds sway
in the decision-making process even after countervailing evidence has
accumulated.
Ms Sanborn has reviewed the veterinary medical literature in an exhaustive
a... 阅读全帖
k****z
发帖数: 1863
9
来自主题: NextGeneration版 - 紧急求助 两个月的宝宝病危
http://en.wikipedia.org/wiki/Intestinal_neuronal_dysplasia
Intestinal neuronal dysplasia
From Wikipedia, the free encyclopedia
Intestinal neuronal dysplasia
Classification and external resources
OMIM 243180 601223
Intestinal neuronal dysplasia (or neuronal intestinal dysplasia or NID) is
an inherited disease of the intestine that affects one in 3000 children and
adults. The intestine uses peristalsis to push its contents toward the anus;
IND sufferers have a problem with the motor neurons tha... 阅读全帖

发帖数: 1
10
来自主题: Military版 - 看中医药管理局怎么糊弄人的
看人家原文咋写的
Moluodan, a preparation of Chinese
medicine herbs, was associated with
a decrease in the dysplasia score,
with dysplasia disappearance
reported in 24.6% of patients in
an RCT (196 patients) [176].
Future studies should confirm
these results before any
recommendation can be made
regarding these therapies.
i*******y
发帖数: 319
11
I am age 34. Married with one two-year boy. Most recent Pap Smear results
show abnormal results for the first time:
"High grade squamous intraepithelial lesion (HGSIL) encompassing moderate
dysplasia, severe dysplasia and carcinoma in-situ"
According to the doctor, it's a sign of severe pre-cancer condition and she
asked me to schedule a colposcopically directed biopsy ASAP. It is also
very likely that a LEEP procedure need to follow after the biopsy.
I just relocated to Brooklyn NY three mon
a**********2
发帖数: 3726
12
来自主题: NextGeneration版 - 紧急求助 两个月的宝宝病危
Intestinal neuronal dysplasia — Intestinal neuronal dysplasia (IND) is a
pattern of histologic abnormalities in rectal suction biopsies among infants
or older children with chronic constipation. The clinical significance of
the findings are unclear and controversial [42]. Features include
hyperganglionosis, in which the ganglia are giant or ectopic, and increased
acetylcholinesterase staining [42,43]. Similar changes may be seen proximal
to the aganglionic segment in Hirschsprung disease. There ... 阅读全帖
i*******y
发帖数: 319
13
I am age 34. Married with one two-year boy. Most recent Pap Smear results
show abnormal results for the first time:
"High grade squamous intraepithelial lesion (HGSIL) encompassing moderate
dysplasia, severe dysplasia and carcinoma in-situ"
According to the doctor, it's a sign of severe pre-cancer condition and she
asked me to schedule a colposcopically directed biopsy ASAP. It is also
very likely that a LEEP procedure need to follow after the biopsy.
I just relocated to Brooklyn NY three mon
k****r
发帖数: 593
14
上周末看的breeder寄来狗狗的照片和agreement了。
觉得这条还不错
If the puppy is being sold as working quality, and the puppy is diagnosed
with hip or elbow dysplasia by the Orthopedic Foundation for Animals (OFA),
or the University of Pennsylvania (PennHip), the Buyer can either agree to
keep the puppy with spay or neuter , or may return it to the Seller for a
replacement puppy from the next available litter. If the puppy is being
sold as pet quality and the puppy is diagnosed with crippling hip dysplasia
as describe... 阅读全帖
N******t
发帖数: 16051
15
来自主题: pets版 - petplan你们都用什么plan啊?
是不是hip dysplasia之类的啊
这两天看dogs101,想学狗种来着。上面不断讲大狗容易得hip dysplasia,狗种没记住
,就记住这个病了
anyway,bless
L******u
发帖数: 3412
16
来自主题: pets版 - PU野花之行余图奔几张!
乱养当然是活不长啊。。那个纽芬兰有关节炎,哪能让做剧烈运动啊。。
对我来说,只要狗是自然死亡,不是病死的
它活18年或8年我都能接受。关节问题是大狗的高危病,这么办法。。
我在国内论坛看到个阿拉,才7个多月,就查出来昼盲症,elbow dysplasia , hip
dysplasia
老受罪了。。国内那个医疗条件也治不好。。
l*******r
发帖数: 4028
17
来自主题: pets版 - 杜宾实在太帅了
我之前因为杜宾的健康隐患都准备pass这个品种了,不过后来发现breeder有很好的
warranty, 才放心的预定了。
Lifetime Guarantee
1. Lifetime Satisfaction Guarantee
If at any time during the life of a Kimbertal Doberman or Rottweiler, the
pup is found not to be compatible with the situation of the original
purchaser, the pup may be returned (along with their AKC certificate) to the
kennel, and be replaced at no charge. The owner’s “word” is all that is
needed for the replacement.
2. Money Back Guarantee
One third of the purchase price may be r... 阅读全帖
b******a
发帖数: 12216
18
来自主题: pets版 - 科普系列
第三篇——Doggone DNA – inherited health problems in pets
(这篇太长了。。。我就把两个table里的内容copy过来了。如果有感兴趣的想要看,我
可以周一去单位scan一下这篇文,然后发上来)
Inherited Health Problems in Common Breeds
Most popular dog breeds
Labrador retriever: Degenerative joint diseases; eye problems that cause
blindness; extreme muscle weakness after intense exercise or excitement.
German shepherd: Degenerative joint diseases; temperament issues; eye
problems; heart conditions; a thyroid condition that can cause skin and
behavioral chages; dege... 阅读全帖
e****0
发帖数: 678
19
来自主题: MedicalCareer版 - [我的CK]儿科
• leukemia
ALL AML CLL
child adult elderly
BM lymphoblasts 25%myeloblasts
lab Lymphocyte 5000, mature-appearing cells
• Osgood-schlatters disease
 Adolescent male athletes
 Traction apophysitis—quadriceps tendon put the traction on the
apophysis of the tibial tubercle where patellar tendon inserts.
 A firm mass =heterotopic bone formation
 Pain can be reproduced by extending the kne... 阅读全帖
j******g
发帖数: 171
20
2013 ACAP Pathology Symposium: Clinicopathologic correlative review of
gynecologic diseases
Costs: Free.
See also http://capaht.org/capa/html/story/meetings/2013-acap-pathology-symposium-clinicopathologic-correlative-review-gynecologic
Targeted audience: Gynecologists, pathologists, primary care physicians and
oncologists interested in gynecologic diseases.
Goal: After the course, the attendees will be able to understand the updates
on Gynecologic pathology and treatment guidelines. The case dis... 阅读全帖
c***s
发帖数: 70028
21
张美梅不忍心看爱犬Yellow疼痛,花百万元帮Yellow换人工髋关节,手术成功后,Yellow恢复往日活力。
张美梅聘请美国医疗团队6人赴台医治Yellow。
Yellow 罹患犬髋关节形成不良症,须换人工关节(箭头处)。
4月10日电 据台湾《苹果日报》报道,台北市一名女子8年前发现饲养的黄金猎犬行动极痛苦不便,她四处求诊但未改善,后经诊断可能罹患“髋关节形成不良症”,但当时岛内为犬只置换人工关节技术不纯熟,因此当她得知美国有两位兽医是该领域权威,不惜砸下百万元(下同)邀请对方整个医疗团队共6人赴台动刀,其爱犬 “Yellow”因此成为台湾第一只成功置换双侧人工髋关节的狗。
报道说,原本从事房地产业的女子张美梅(52岁),8年前买了一只才一个月大的雄性黄金猎犬“Yellow”,由于它善解人意又爱撒娇,深获张美梅全家疼爱,被当成家中一份子。张美梅说,Yellow在4个月大时常突然滑倒,有时四肢还痛到无法走动,食不下咽。她很心疼,带着它四处求医,并买了各类昂贵保健食品让Yellow服用,但情况未见改善。
张美梅说,当时她陆续找了5位兽医,还让狗进行传统针灸、水疗,但还是没改善,直到第6... 阅读全帖
a***s
发帖数: 12296
22
据英国每日邮报报道,世界上最矮的一对夫妻,身高不足3英尺(0.9米),但却身体力行地向人们证明了在爱面前,身高体型都无关紧要。
来自巴西的Paulo和Katyucia,身高分别只有34.8英寸(88cm)和35.2英寸(89cm),仿佛童话世界里走出来的小矮人,他们俩的身高有望被载入吉尼斯世界纪录。这对世界最矮夫妇是10年前在社交媒体上认识的,后来他们就开始用MSN聊天交流。
30岁的Paulo身形矮小是因为生来患有一种罕见的疾病——发育不良性侏儒症(diastrophic dysplasia dwarfism),他回忆自己对妻子是一见钟情:“看到她的第一眼,我就觉得她很美。”而患有软骨发育不全侏儒症的Katyucia,则称她曾经在刚认识丈夫时将其屏蔽,“我第一次跟Paulo说话时,他言辞轻浮,真的很令人生厌。”
Paulo现在是一位法律助理,他说:“Katyucia当时以为我在调戏她,其实我只是想要示好,她认为我是个非常无聊的家伙。”这两人间的故事本来不会继续发展下去,直到18个月后的某一天Katyucia突然解除了对Paulo的屏蔽。
Katyucia现在拥有自己的美容院,里面的一... 阅读全帖
y****t
发帖数: 9189
23
来自主题: Military版 - Sterling回复中的有关姚明 (转载)
【 以下文字转载自 Basketball 讨论区 】
发信人: practhm (practhm), 信区: Basketball
标 题: Sterling回复中的有关姚明
发信站: BBS 未名空间站 (Wed May 28 16:35:22 2014, 美东)
http://i.usatoday.net/sports/!sterling/2014-05-27%20Secured%20D
Referring to Yao Ming, a player stated (on a televisi
on show): “Tell Yao Ming,‘ching chong yang wah ah soh.’” And
although the statement offended many in the Chinese community, the NBA
neither fined nor suspended the player. Last month, that same player—now a
former player—was accused of publicly mo... 阅读全帖
g********2
发帖数: 6571
24
来自主题: USANews版 - 今天的人渣盛会是什么日程?
Theme: A Lifetime of Fighting for Children and Families
Tuesday will feature the roll call vote and how Hillary has spent her entire
career working to make a difference for children, families, and our country
. The Mothers of the Movement participating include Gwen Carr, mother of
Eric Garner; Sybrina Fulton, mother of Trayvon Martin; Maria Hamilton,
mother of Dontré Hamilton; Lucia McBath, mother of Jordan Davis; Lezley
McSpadden, mother of Michael Brown; Cleopatra Pendleton-Cowley, mother of
H... 阅读全帖
L******e
发帖数: 679
25
My friend's daughter, 1 year and 1 month old, was diagnosed as DDH in China.
Most doctors in China even do not know this disease. So, he got at least 3
different suggestions:
1, two doctors said that the situation is not serious, what he need to do is
'hold her like a frog' for several months.
2. One doctor suggested to stablize the position with cast.
3. One doctor suggested to use positioning device.
My friend is totally confused and in panic. He called me to help him
consult doctors in USA.
L******e
发帖数: 679
26
This picture is the first one when they found the problem

China.
3
is
L******e
发帖数: 679
27
This is the second one after three month of 'frog hold' position.
Please help. Thanks
L******e
发帖数: 679
28
Thank you so much.
What i worried is the situation of this little girl. How bad, or a mis-
diagnosis? According to my friend, the little girl looks normal except some
'crinkle' in her skin.
c********p
发帖数: 322
29
lz太白了,胯脱位这破病还说国内没多少人知道?只能说你的朋友没有好好调查而已.
求助先发外观图片上来,单纯的x-ray不能很好的说明问题,虽然左侧股骨头成骨确实差
些.
拍照请将患儿双腿尽量并拢伸直,不要穿裤子.
对于一岁左右的孩子,如果确诊,目前来看应该可以进行(内收肌切断)外展位支具固定,
加上其他的保守疗法,不一定需要髋臼成型术.
岁数大一些的患儿,则需要皮(骨)牵引,自体(异体)骨移植髋臼成型术.
这个不是啥高精尖的东西,老美病人量不够,一般地方才真的不会治呢.
如果确诊,应该及时治疗.
等你更新了我再接着看看吧.
L******e
发帖数: 679
30
谢谢你的回复,我会和我的朋友联系新的照片。然后再和你联系。
非常感激
z******5
发帖数: 71
31
朋友的小孩得了常染色体隐性遗传病,中文名称是假性类风湿骨发育不良,英文名是
progressive pseudorheumatoid dysplasia (PPD).
国内也没什么特别有效的治疗方法,想问问国外有没有什么治疗方法,万分感谢。
d********1
发帖数: 77
32
Sorry I cannot type Chinese on this computer.
My wife (33 years old) has some 腿麻, 胳膊麻 etc lately. Her numbness is
sometimes on the left or right leg, arm, toes, fingers, and even face, but
never on all these places at the same time.
We went to our family doctor and he ordered a non-contrast brain MRI for her
. It turns out there is a sub-centimeter focus on her brain. Then our doctor
ordered a contrast MRI, the sub-centimeter focus is still there. Report 1)
below is the full report by the radiol... 阅读全帖
l*h
发帖数: 4124
33
来自主题: Medicine版 - 问医求助脑瘫儿
cerebral palsy is a term too broad. there should be a diagnosis based on the
cause. it could be SAH occurring in the delivery process, cerebral
dysplasia, infection and many many reasons.
the calcification in the ventricle indicates it is more likely it was caused
by a trauma/hemorrhage in her early life. paralysis could have been avoided
if detected and treated early.
g*****n
发帖数: 21
34
手指中间的一段,一按就有些痛,有很久时间了(2年左右),最近跟医生说起,让我
去照x光,有阴影,又让照了MRI。 现在还不清楚,又说让照mri with contrast。我两
年办前得了甲亢,不知道是不是报告里的brown tumor。
这是MRI的检验报告:
1. Nonspecific lesion involving the medullary portion of of the middle
phalanx
left hand fourth digit without significant expansion of the bone but with
mild
cortical thinning and slightly ill-defined margins. Associated edema of the

adjacent surrounding soft tissues. Finding is considered nonspecific but

definitive cyst or fluid fluid levels... 阅读全帖
t**l
发帖数: 577
35
来自主题: Medicine版 - 先天性脊椎骨骺发育不良?
头次在这版发贴,不知道到那里找信息,问大家一声,谢了先!
大学同学在国内,娃儿发现有 “先天性脊椎骨骺发育不良” "表现为身材发育严重迟
缓" (spondyloepiphyseal dysplasia congenita) 好像找不到好的治疗,所以问一下
美国这边有没有什么办法或者建议?
c******n
发帖数: 97
36
胃胀气,恶心,大半年的时间了,最近越来越难受,晚上醒来就睡不着了,胃里难受的
厉害,隐约有些作痛, 自己觉得好像有些低烧,量了下大概也就37度, 上个月月底作
的胃镜,一个多礼拜后受到结果,如下:
The stomach biopsies are positive for interstinal metaplasia. The lining of
the stomach has developed some small intestinal lining from chronic
inflammation. There is no dysplasia or worrisome features.
H.pylori infection is negative.
Proceture照片上提到了Gastric antrum: Erythematous(Hyperemic)
想和医生约着谈一下,约到月底去了。。。之前约胃镜就约了快一个月。。。
可是还是非常难受,昨晚又睡得很不好,上来问一下,这严不严重啊,有没有药的呀,
要等到月底,实在太痛苦了,话说在美国看病太折腾人了。。。
l*h
发帖数: 4124
37
来自主题: Medicine版 - 新生儿中风 (转载)
1. get a copy of the delivery note and the neonate evaluation.
2. read the MRI carefully to determine whether it's a stroke, a traumatic
injury or a dysplasia.
3. if it's a stroke, don't ignore other possible causes, such as coagulatory
diseases.
4. don't wait for an answer from the above before starting functional
training. do it asap.
c****d
发帖数: 3318
38
【 以下文字转载自 NextGeneration 讨论区 】
发信人: clould (Keep your feet on the ground.), 信区: NextGeneration
标 题: 紧急求助 两个月的宝宝病危
发信站: BBS 未名空间站 (Thu May 29 20:22:25 2014, 美东)
帮朋友咨询:
宝宝两个月,诊断为小肠神经节细胞发育不良 (IND- intestinal neuronal
dysplasia)。现在孩子不能吃喝,不能排大小便,只能靠注射营养维持生命。
宝宝现在在国内,父母希望来美国治疗,但不知道如何得到医生的建议。他们想先咨询
这边的医生,看看有没有好的治疗方案,如果有就赶紧过来,如果医生建议放弃的话就
要放弃了。
恳请版上的朋友指点,这种情况下该怎么联系医生?有没有人能联系到懂中文的儿医?
谢谢了。
f***a
发帖数: 93
39
来自主题: NextGeneration版 - 请教懂医的妈妈们一个问题
没错。
transformatin zone 是 ecto 和 endocervix 之间的区域。有病变的话通常从这里还
是,如果pap没有,consider inadequte for dysplasia evalution.
如果月月妈以前的pap都正常,也不用担心。。。
m*******e
发帖数: 1886
f********y
发帖数: 120
41
来自主题: NextGeneration版 - 求推荐湾区骨科医生
孩子有Hip Dysplasia需要找一个骨科医生,最好是小儿骨科的
J*******a
发帖数: 96
42
来自主题: NextGeneration版 - 请问怎么用被子包小孩?
swaddle的时候盆骨的地方千万不要弄得太紧,容易发生 hip dysplasia。
p*****a
发帖数: 146
43
去年三月怀老二的时候查出pap 有轻度病变,医生等孩子出生后做了活检,有两个小区
域有轻度癌前病变细胞 pre-cancer cells, dysplasia,今年三月复查的时候还是保持
轻度。继续观察到最近检查,发现那两感染区域没有缩小,其他地方居然又多了一小点
,医生看显微镜的口气貌似不是很乐观,不确定是否变成moderate中度了,检查结果还
没出来。医生说有的人在中度的时候就选择做锥形切除手术切掉宫颈口那块了。听了怕
怕的,不知道如果真是中度是否要做切除。看自己这情况,估计靠自身逆转的可能性也
不大了。
宝宝版的妈妈们,如果有类似经历,能否分享下经验,现在心里很担心呢。多谢啦
d*****g
发帖数: 135
44
不知道会不会是hip dysplasia.即使是的话也有相应的治疗手段,9个月大还不晚,可
能就是麻烦一点。不过话说回来,儿医一般在6个月之前的每次checkup都会检查髋骨的
(就是把娃的俩条腿掰来掰去),是的可能性也不大。9个月照x光应该能吧骨头看很清
楚了,看医生结果吧。
大大的bless!

1cm
c****d
发帖数: 3318
45
来自主题: NextGeneration版 - 紧急求助 两个月的宝宝病危
帮朋友咨询:
宝宝两个月,诊断为小肠神经节细胞发育不良 (IND- intestinal neuronal
dysplasia)。现在孩子不能吃喝,不能排大小便,只能靠注射营养维持生命。
宝宝现在在国内,父母希望来美国治疗,但不知道如何得到医生的建议。他们想先咨询
这边的医生,看看有没有好的治疗方案,如果有就赶紧过来,如果医生建议放弃的话就
要放弃了。
恳请版上的朋友指点,这种情况下该怎么联系医生?有没有人能联系到懂中文的儿医?
谢谢了。
B****J
发帖数: 586
46
来自主题: NextGeneration版 - 紧急求助 两个月的宝宝病危
不太懂,你去Medicine版问一下那儿的专家们。不过这孩子的病确诊了吗?怎么确诊的
?这是个遗传病,应该没法儿根治。

宝宝两个月,诊断为小肠神经节细胞发育不良 (IND- intestinal neuronal
dysplasia)。现在孩子不能吃喝,不能排大小便,只能靠注射营养维持生命。
宝宝现在在国内,父母希望来美国治疗,但不知道如何得到医生的建议。他们想先咨询
这边的医生,看看有没有好的治疗方案,如果有就赶紧过来,如果医生建议放弃的话就
要放弃了。
恳请版上的朋友指点,这种情况下该怎么联系医生?有没有人能联系到懂中文的儿医?
谢谢了。
s**********x
发帖数: 4593
y****o
发帖数: 41
48
来自主题: NextGeneration版 - 紧急求助 两个月的宝宝病危
Please check this link
http://www.inspire.com/groups/agmd-gi-motility/discussion/despe
someone in the discussion mentioned that The Pediatric Neurogastroenterology
Program at MassGeneral Hospital for Children (MGHfC) provide evaluation and
treatment of severe intestinal disorders, including: Intestinal neuronal
dysplasia
a*****b
发帖数: 1483
49
来自主题: NextGeneration版 - breech宝宝需要做xray?
是必须做的,看看有没有Developmental Dysplasia of the Hip (DDH), 这个好像女孩
breech position很常见,你google一下,还是做个xray放心些,再说xray又不可怕
其实应该一出生就做b超的
z**********n
发帖数: 7
50
来自主题: NextGeneration版 - 有姐妹知道ddh么?
7月份有了twins,其中小的那个是breech,所以两个月的时候做了ultrasound,当时护士
说挺好的,也就放心了。没想到这次四个月check的时候,儿医说宝宝left hip 50%
femoral head coverage, no hip dysplasia, 让去看orthopedics.心都碎了,姐妹们
有知道这个的么,能治好么?
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